Foundation / Corporation
Chan Zuckerberg Initiative (CZI)
07/23/19 5:00 PM Pacific Time
Grants to USA nonprofit advocacy organizations led by patients for the development of research networks related to their rare diseases. Funding is intended to create and develop a model in which researchers and clinicians work together with patients to explore new research strategies and approaches with the goal of advancing progress against their diseases. Successful applicants will receive funding, training, community mentorship, and capacity building resources.
Each research community will be led by a patient organization in collaboration with researchers and clinicians. The Rare As One Network will initially focus on helping patient groups build a network of researchers, clinicians, and patients working together to align on the state of the science, the open research questions, and research priorities for their rare disease. The creation of shared research priorities will incorporate the needs of key stakeholders and help optimize research funding.
- Need for a Research Network as demonstrated by insufficient activity within the disease area that is dedicated to the formation of shared research priorities.
- Leadership and Organizational Focus that reflect and adequately represent the diversity of the community served.
- Commitment to Collaboration as demonstrated by having a track record of joining (or attempting to join) with other groups to increase impact; awareness of existing complementary efforts and organizations and a vision for resolving any redundancy; and a desire to draw on existing community relationships and/or build new ones.
- Patient Community-Oriented in connecting with the population affected by the disease and in developing strategies and solutions with input from the community.
- Potential to Advance Science in the disease area field through engagement with the research community and creation of a research network.
For an additional list of evaluation criteria, see:
GrantWatch ID#: 186429
CZI will provide up to 10 patient organizations with grants.
Each grant will be up to $450,000 total over a period of two years.
Awards will be two years in length with a project start date of no earlier than January 2020. Actual start date may vary.
USA: Alabama; Alaska; Arizona; Arkansas; California; Colorado; Connecticut; Delaware; Florida; Georgia; Hawaii; Idaho; Illinois; Indiana; Iowa; Kansas; Kentucky; Louisiana; Maine; Maryland; Massachusetts; Michigan; Minnesota; Mississippi; Missouri; Montana; Nebraska; Nevada; New Hampshire; New Jersey; New Mexico; New York City; New York; North Carolina; North Dakota; Ohio; Oklahoma; Oregon; Pennsylvania; Rhode Island; South Carolina; South Dakota; Tennessee; Texas; Utah; Vermont; Virginia; Washington, DC; Washington; West Virginia; Wisconsin; Wyoming